14 February 2012 Trailblazing film maker launches trailer online
A Life Worth Living, which was part funded by the Muscular Dystrophy Campaign, is a film about Jon's quest to meet other inspiring men with Duchenne across the UK and beyond. The film will highlight the many challenges he must overcome to make such a journey, and the remarkable lives of the people he meets along the way.
Jon is 30 years old and has Duchenne Muscular Dystrophy. He is from the UK and lives in the family home in Worthing, West Sussex, supported by a team of carers who provide his personal care.
Despite his complex care needs, he works part-time at a local disability organisation and is an active campaigner for the rights of disabled people. He also enjoys a good glass of wine or two with friends down the pub, and enjoys cinema, theatre and comedy shows.
Between 1999-2007 Jon lived independently at the University of Essex in Colchester. Over a period of eight years, he gained a Bachelor's Degree in Politics and International Relations, a Masters degree in Environmental Studies and finally a Ph.D. in Government. His early university years were fairly typical of most students, characterised by clubbing, drinking, practical jokes and the odd bit of studying.
As I reach my 30th year, my deteriorating health makes me realise that there are more years behind me than ahead. But I'm not dead yet, and I'm determined to document just what can be achieved by people living with Duchenne Muscular Dystrophy. There are so many remarkable, spirited Duchenners out there who have so much to offer and can inspire a younger generation... it's time that story was told.
A Life Worth Living will be released on DVD in April 2012.
Visit www.alifeworthlivingfilm.com for more details!